There are many resources available on the
internet to help Behcet's
patients, their loved ones, and health care professionals find the
information they need:
Behcet's organizations /
support groups:
American
Behcet's Disease Association
Belgium:
Amicale de Behcet en
Belgique( AB7Be )
Canada:
Behcet's Canada
England/U.K.:
Behcet's
Syndrome Society (U.K.)
France:
L'Association de BEHCET
Israel:
Behcet Israel Group (B.I.G.)
including info on ordering the new book, "Behcet's
by Nature:
a Holistic View of Underlying BD Mechanisms and Therapies"
Germany:
Deutsches Register Morbus
Adamantiades-Behçet e.V.
Italy:
Associazione Italiana Malattia di Behcet
Jordan Friends of Behcet's Disease Patients' Society
(no website available)
Email address:
jamaltamimi@hotmail.com
Email address:
wmadanat@index.com.jo
Korean
Behcet's Association
New Zealand: Behcet's New Zealand Society (no
website available)
Mrs.Dot Field, PO Box 117, Kaikohe, Northland, New
Zealand
Phone: +64 (0)9 4010429
Email address:
dotjohnfield@hyper.net.nz
Portugal:
http://behcetemportugal.blogspot.com/
Spain: Asociación Española de la
Enfermedad de Behçet
Spanish email support group for Behcet's
Address:
http://es.groups.yahoo.com/group/Behcet-Enfermedad
Turkish Association of Behcet Patients (no website
available)
Çetin Ezber (Secretary)
IU Cerrahpasa Tip Fakultesi
Ic Hastaliklari Anabilim Dali
Romatoloji Bilim Dali
34303 Cerrahpasa
Istanbul, Turkey
Phone:
+90 212 520 18 97
+90 212 522 51 22
+90 212 522 51 27
Email address:
hyazici@attglobal.net
International Society for Behcet's
Disease, publishing BD News
This site/newsletter is currently geared to physicians,
but will add a patient
component when the ISBD gets extra funding.
ABDA list of
patient-recommended doctors familiar with treating Behcet's disease
(click on "Doctor Registry")
An
internet support group on yahoo.com for Behcet's patients
Another internet bulletin board/support group on yahoo.com for Behcet's
patients
Internet support group for CARERS of Behcet's patients
(family and friends
only)
Instructions for joining a Behcet's chat room on Yahoo
(chat room is currently open
three days/week -- see website for days and times)
Autoimmune Disease Support Group
Rest Ministries
A Christian
organization serving people who live with chronic illness and pain.
Publishes
HopeKeepers magazine.
The Invisible
Disabilities Advocate
IDA helps
friends and family see the courage and determination it takes to live
with a debilitating illness, in
spite of the challenges, frustrations and losses.
Other relevant sites:
Behcet's Disease Books and Resources Online Store
The NEW "Behcet's
Syndrome Evaluation, Treatment and Research Center" at the
Hospital for Joint Diseases in New York City -- the first official
Behcet's treatment center in the U.S.
The "got
behcet's?" store (branded line of clothing and other products)
A site
specifically addressing the bovine extract dietary supplement
for treatment of Behcet's
http://www.behcet.org.il/chowsrecipe.htm
Information on the use of Chinese herbal medicine to treat Behcet's.
Johns
Hopkins Vasculitis/Behcet's site
Massachusetts
Eye Research and Surgery Institute (MERSI)
(newly formed by Dr. C. Stephen Foster, and housing the Ocular
Immunology and Uveitis Foundation)
Vanderbilt Medical Center/Behcet's disease
site
The Merck Manual chapter on Behcet's disease
National Institute of Health's Clinical Trials Search Page
National Institute of Health's information on Behcet's
The
Neuropathy Association
The
Arthritis Foundation
Information on vasculitis (National Jewish
Medical and Research Center)
Free prescription medication for qualified patients in the US (The
Medicine Program)
Social Security Disability (SSD), Medicare and Medicaid information
FAQ about
applying for disability (www.disabilitysecrets.com)
HealingWell.com
Article by
M. Shapiro: Behcet's Disease: Immune Process and the Potential
Impact of Nutritional Supplementation
Hulusi
Behcet's biography and Behcet's disease information
All information on this web site is ©
2000-2008 by Joanne Zeis.
Contact information
for this site:
Address:
Joanne Zeis, PO Box
255, Uxbridge, MA 01569 USA
Send email to Joanne Zeis
Fax: 508-278-5145
