There are many resources available on the
internet to help Behcet's
patients, their loved ones, and health care professionals find the
information they need.
Behcet's organizations /
support groups:
American
Behcet's Disease Association
Belgium:
Amicale de Behcet
en Belgique( AB7Be )
Canada: Behcet's Canada
England/U.K.:
Behcet's Syndrome Society (U.K.)
France:
L'Association de BEHCET
Israel:
Behcet
Israel Group (B.I.G.)
Information on natural / alternative treatments for BD,
including info on ordering the new book, "Behcet's
by Nature:
a Holistic View
of Underlying BD Mechanisms and Therapies"
Germany:
Deutsches Register Morbus
Adamantiades-Behçet e.V.
Italy:
Associazione Italiana Malattia di
Behcet
Jordan Friends of Behcet's Disease Patients'
Society (no website available)
Email address:
jamaltamimi@hotmail.com
Email address:
wmadanat@index.com.jo
Korean
Behcet's Association
New Zealand: Behcet's New Zealand Society (no website available)
Mrs.Dot Field, PO Box 117, Kaikohe, Northland, New
Zealand
Email address:
dotjohnfield@hyper.net.nz
Portugal:
http://behcetemportugal.blogspot.com/
Spain: Asociación Española de la
Enfermedad de Behçet
Spanish email support group for Behcet's
Address:
http://es.groups.yahoo.com/group/Behcet-Enfermedad
Turkish Association of Behcet Patients (no website
available)
Çetin Ezber (Secretary)
IU Cerrahpasa Tip Fakultesi
Ic Hastaliklari Anabilim Dali
Romatoloji Bilim Dali
34303 Cerrahpasa
Istanbul, Turkey
Phone:
+90 212 520 18 97
+90 212 522 51 22
+90 212 522 51 27
Email address:
hyazici@attglobal.net
Vasculitis Foundation
International Society for Behcet's
Disease, publishing BD News (requires
Internet Explorer)
ABDA
list of patient-recommended doctors familiar with treating Behcet's
disease
(click on "Doctor Registry")
An
internet support group on yahoo.com for Behcet's patients
Another
internet bulletin board/support group on yahoo.com for Behcet's patients
Internet support group for CARERS of Behcet's patients
(family and friends only)
Instructions for joining a Behcet's chat room on Yahoo
(chat room is currently open
three days/week -- see website for days and times)
Autoimmune Disease Support Group
Rest Ministries
A Christian
organization serving people who live with chronic illness and pain.
Publishes HopeKeepers magazine.
The Invisible
Disabilities Advocate
IDA
helps friends and family see the courage and determination it takes to
live with a debilitating illness, in
spite of the challenges, frustrations and losses.
Other relevant sites:
Behcet's Disease Books and Resources Online Store
The Essential
Behcet's blog, up-to-date Behcet's news, research and information
The "Behcet's Syndrome Evaluation, Treatment and Research Center"
at the
Hospital for Joint Diseases in New York City -- the only official
Behcet's treatment center in the U.S.
behcets.info:
An informational website on Behcet's by
Gwilym ab Ioan,
a patient in Wales
Massachusetts Eye Research and Surgery
Institute (MERSI)
(Founded by Dr. C. Stephen Foster, and housing the Ocular
Immunology and Uveitis Foundation)
This website includes many excellent articles on treating
uveitis symptoms with immunosuppressant/
systemic medications -- look under "Patient Information"
emedicine.com
description of Behcet's (rheumatologist-written)
emedicine.com
description of Behcet's (dermatologist-written)
emedicine.com
description of Behcet's (good overview of treatments)
Johns Hopkins Vasculitis/Behcet's site
The Merck Manual chapter on Behcet's
disease
National Institutes of Health's information
on Behcet's
MedLine Plus search on Behcet's
National Institutes of
Health's Clinical Trials Search Page
The
Neuropathy Association
The
Arthritis Foundation
The
"got behcet's?" store (clothing and
other products)
Free prescription medication for qualified
patients in the US (The Medicine Program)
Social Security Disability (SSD), Medicare and Medicaid information
FAQ about
applying for disability (www.disabilitysecrets.com)
http://www.behcet.org.il/chowsrecipe.htm
Information on the use of Chinese herbal medicine to treat Behcet's.
Article
by M. Shapiro: Behcet's Disease: Immune Process and the
Potential Impact of Nutritional Supplementation
Hulusi
Behcet's biography and Behcet's disease information
A site
specifically addressing the bovine extract dietary supplement
for treatment of Behcet's
All information on this web site is ©
2000-2008 by Joanne Zeis.
Contact information for this site:
Address:
Joanne Zeis, PO
Box 255, Uxbridge, MA 01569 USA
Send email to Joanne Zeis
Fax: 508-278-5145
