Videos / Audio This section is being updated
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amazon.com, in print and Kindle editions around the world.
Click here to place your order from the publisher instead.
Use the code MLIWEB to get 30% off! (U.S. delivery only)
Discovery Health's "Mystery Diagnosis" episode
about my 17-year search for a Behcet's diagnosis:
Available on youtube at these links:
Part 1: https://www.youtube.com/watch?v=22NHLG9jIOM
Part 2: https://www.youtube.com/watch?v=b62YET6QVUY
IMPORTANT NOTES ABOUT THIS "MYSTERY DIAGNOSIS" EPISODE:
- I didn't supply the picture in this video of fluid-filled blisters (called vesicles) that covered the patient's legs. When I get these blisters, they're nearly always on my fingers/hands or feet/toes. I've never had them all over my legs like the picture shows, and I haven't heard of other BDers with extensive blister eruptions on their legs like the picture showed, either. Of course, that doesn't mean it can't happen, just that I haven't heard of it or seen it through my own connections. From what I understand, though, other autoimmune illnesses could cause big eruptions like that: Sweet's syndrome may be one possibility, and Sweet's occasionally shows up in people who have BD.
- I also didn't supply the picture of oral ulcers that appears in the video (i.e., that wasn't my mouth in the picture).
- The show implied there was one specific drug that put me into remission, but that wasn't the case. My remission lasted approximately two years.
Do you think you have Behcet's Disease?
This 60-second ABDA public service announcement covers the
most important symptoms of Behcet's, and how to get help.
This 60-second ABDA public service announcement covers the
most important symptoms of Behcet's, and how to get help.
Behcet's Disease Explained
A 10-minute video created by the American Behcet's Disease Association.
It features patients and ABDA Board members, discussing their symptoms,
how this rare autoimmune illness is diagnosed, and how you can help.
(At the time this video was made, Sanya Richards was believed to have
Behcet's disease; she has since received a different diagnosis.)
A 10-minute video created by the American Behcet's Disease Association.
It features patients and ABDA Board members, discussing their symptoms,
how this rare autoimmune illness is diagnosed, and how you can help.
(At the time this video was made, Sanya Richards was believed to have
Behcet's disease; she has since received a different diagnosis.)