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BD Books and
Resources
PO Box 255
Uxbridge, MA
01569 USA
Contact:
Joanne Zeis
Send email to
Joanne Zeis
Due to the volume of email sent to
this address, it may
take several days to receive a response.
Fax:
508-278-5145
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Watch the Discovery Health
Channel's 2005 profile of my 17-year search for a
diagnosis, on their
series "Mystery Diagnosis." If you've missed the
re-runs on DHC or TLC and want to see the show,
contact me . It's
offered at no charge
through a private online hosting company, which is a
compromise suggested by the
show's producers.
The episode is also available on iTunes for $1.99: Search
under
"Mystery Diagnosis, Season One, Episode 8, Blood Brothers"

Welcome...
to the Behçet's Disease Books and Resources
website. It has been created by
Joanne Zeis, Behçet's patient and author
of Essential
Guide to Behçet's Disease,
You Are Not
Alone: 15 People with Behçet's, Basic Information on Behçet's
Disease, and Behçet's
Disease: Medical Research Studies. This site was last
updated on 10/5/08. If you're new to Behçet's disease (BD), please take a
look at
Behçet's Basics.
This section provides a general overview of the symptoms of Behçet's, as
well as information on diagnostic criteria, and a description of the
challenges of living with BD on a daily basis.
The resources offered here are
designed to meet the needs of anyone with Behçet's connections -- from
patients, their family members and friends, to health care
professionals.
As a 29-year veteran of Behçet's disease, I
understand the frustrations and pain of living with this illness. Trying
to find appropriate treatment is hard enough. Finding well-written,
comprehensive information about Behçet's disease shouldn't be one of
your frustrations.
Be well,
Joanne Zeis
As a long-time member and
supporter of the American Behçet's Disease Association, Joanne Zeis
works closely with the organization in distributing books and resources
for patients, their loved ones, and healthcare providers. She is also a
member of the International Society for Behçet's
Disease,
the Vasculitis Foundation and the American Medical Writers Association. She holds a B.S. in
Psychology from Tufts University, with additional classes through the
Continuing Education Department of Harvard Medical School, and the
Center for Spirituality, Theology and Health at Duke University Medical
Center. Joanne's search for a Behcet's diagnosis was the subject of an
episode of the Discovery Health Channel's "Mystery Diagnosis" TV series
in 2005. In 2006, Joanne was the sole recipient of the American Medical
Association's
Citation
for Distinguished Service award, for her ongoing
work in Behcet's disease. The Citation is
the only national award given each year by the AMA to a non-medically-trained individual.
Joanne works full-time as a medical writer for a company in
Massachusetts, where she provides plain-English interpretations of complex
medical information for health care consumers.
She lives in Massachusetts with her husband and two children and has
been dealing with Behcet's disease since 1979.
Joanne Zeis
PO Box 255
Uxbridge, MA 01569 USA
Send email to Joanne
Please note: Due to the volume of email sent to this address, it may
take several days before you receive a response.
Information on the
United Presbyterian Church at Whitinsville, MA
All information on this website is ©2000-2008 Joanne
Zeis
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Physician praise for
Essential Guide to
Behcet's Disease..."A valuable resource for both patients and physicians."
Kenneth Calamia, MD
Mayo Clinic "A treasury of information."
C. Stephen Foster, MD
Mass. Eye Research
& Surgery Institute
(MERSI)
"Covers Behcet's in a clear, straightforward manner. Both the lay and
medical professions will come away with a much greater understanding and
knowledge of this illness."
Susan Legacy, MD
Medical Liaison, Amer.
Behcet's Disease Assn
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