October 2015: The Behcet's Treatment Center in New York City has become part of the Seligman Center for Advanced Therapeutics (246 E 20th Street, still part of the NYU Center for Joint Diseases). Dr. Yazici, founder of the Center, is now concentrating on research, but the location is still accepting new BD patients.
Click here for the brochure about the Seligman Center, with contact information. The list of diseases that can get infusions doesn't include Behcet's, but that was probably an oversight when they revised the brochure.
Phone number for appointments: 1-646-356-9400.
International Behcet's organizations / support groups:
American Behcet's Disease Association
Canada: Vasculitis Foundation of Canada
China: China Behcet's Patient Association
England/U.K.: Behcet's Syndrome Society (U.K.)
France: L'Association de BEHCET
Présidente : Mme BERNARD Valérie
Adresse : Lieu dit « Favières » – 42123 SAINT CYR DE FAVIVÈRES
Tels : 04.77.64.98.27 / 06.50.34.61.31
Mail : email@example.com / firstname.lastname@example.org
Germany: Deutsches Register Morbus Adamantiades-Behçet e.V.
Italy: Associazione Italiana Malattia di Behcet
Japan: Behcet's Disease Society (Osaka)
Jordan Friends of Behcet's Disease Patients' Society (no website available)
Email address: email@example.com
Email address: firstname.lastname@example.org
Korea: Korean Behcet's Association
New Zealand: Behcet's New Zealand Society (no website available)
Mrs.Dot Field, PO Box 117, Kaikohe, Northland, New Zealand
Email address: email@example.com
Spain: Asociación Española de la Enfermedad de Behçet
Spanish email support group for Behcet's:
Turkish Association of Behcet Patients
Çetin Ezber (Secretary)
IU Cerrahpasa Tip Fakultesi
Ic Hastaliklari Anabilim Dali
Romatoloji Bilim Dali
+90 212 520 18 97
+90 212 522 51 22
+90 212 522 51 27
International Society for Behcet's Disease
An internet support group on yahoo.com for Behcet's patients
Rest Ministries A Christian organization serving people who live with chronic illness and pain. Publishes HopeKeepers magazine.
The Invisible Disabilities Advocate
IDA helps friends and family see the courage and determination it takes to live with a debilitating illness, in spite of the challenges, frustrations and losses.
Other relevant sites:
Behcet's Disease Books and Resources Online Store
The Essential Behcet's blog, up-to-date Behcet's news, research and information
Massachusetts Eye Research and Surgery Institute (MERSI)
(Founded by Dr. C. Stephen Foster, and housing the Ocular Immunology and Uveitis Foundation)
This website includes many excellent articles on treating uveitis symptoms with immunosuppressant / systemic medications -- look under "Patient Information"
Johns Hopkins Vasculitis/Behcet's site
National Institutes of Health's information on Behcet's
MedLine Plus search on Behcet's
National Institutes of Health's Clinical Trials Search Page
The Neuropathy Association
The Arthritis Foundation
The "got behcet's?" store (clothing and other products)
Free prescription medication for qualified patients in the US (The Medicine Program)
Social Security Disability (SSD), Medicare and Medicaid information
FAQ about applying for disability (www.disabilitysecrets.com)
Article by M. Shapiro: Behcet's Disease: Immune Process and the Potential Impact of Nutritional Supplementation
About Behcet's Basics Blog Books Order/Donate Events Links Contact