Links
(If you need a dose of humor to work against those BD blahs, check out my weekly blog, "Your Friday Afternoon Distraction")
The "Behcet's Syndrome Evaluation, Treatment and Research Center" at the
Hospital for Joint Diseases in New York City -- the only official Behcet's treatment
center in the U.S.
New address:
YUSUF YAZICI, MD - Rheumatologist
THE CENTER FOR MUSCULOSKELETAL CARE - NYU HOSPITAL FOR JOINT DISEASES
BEHCET'S SYNDROME CENTER
333 East 38th Street, 4th Floor
New York, NY 10016
Tel. (646)501-7400
Fax. (646)501-7234
International Behcet's organizations / support groups:
American Behcet's Disease Association
Belgium: Amicale de Behcet en Belgique( AB7Be )
Canada: Vasculitis Foundation of Canada
China: China Behcet's Patient Association
England/U.K.: Behcet's Syndrome Society (U.K.)
Finland: Finnish Behcet's Disease Patients Group
France: L'Association de BEHCET
Germany: Deutsches Register Morbus Adamantiades-Behçet e.V.
Italy: Associazione Italiana Malattia di Behcet
Jordan Friends of Behcet's Disease Patients' Society (no website available)
Email address: jamaltamimi@hotmail.com
Email address: wmadanat@index.com.jo
Korea: Korean Behcet's Association
New Zealand: Behcet's New Zealand Society (no website available)
Mrs.Dot Field, PO Box 117, Kaikohe, Northland, New Zealand
Email address: dotjohnfield@hyper.net.nz
Portugal: http://behcetemportugal.blogspot.com/
Spain: Asociación Española de la Enfermedad de Behçet
Spanish email support group for Behcet's
Address: http://es.groups.yahoo.com/group/Behcet-Enfermedad
Turkish Association of Behcet Patients (no website available)
Çetin Ezber (Secretary)
IU Cerrahpasa Tip Fakultesi
Ic Hastaliklari Anabilim Dali
Romatoloji Bilim Dali
34303 Cerrahpasa
Istanbul, Turkey
Phone:
+90 212 520 18 97
+90 212 522 51 22
+90 212 522 51 27
Email address: hyazici@attglobal.net
Wales: behcets.info
International Society for Behcet's Disease
Vasculitis Foundation
ABDA list of patient-recommended doctors familiar with treating Behcet's disease
(click on "Doctor Registry")
An internet support group on yahoo.com for Behcet's patients
Instructions for joining a Behcet's chat room on Yahoo
(see website for days and times)
Autoimmune Disease Support Group
Rest Ministries A Christian organization serving people who live with chronic illness and pain. Publishes HopeKeepers magazine.
The Invisible Disabilities Advocate
IDA helps friends and family see the courage and determination it takes to live with a debilitating illness, in spite of the challenges, frustrations and losses.
Other relevant sites:
Behcet's Disease Books and Resources Online Store
The Essential Behcet's blog, up-to-date Behcet's news, research and information
Massachusetts Eye Research and Surgery Institute (MERSI)
(Founded by Dr. C. Stephen Foster, and housing the Ocular Immunology and Uveitis Foundation)
This website includes many excellent articles on treating uveitis symptoms with immunosuppressant / systemic medications -- look under "Patient Information"
emedicine.com description of Behcet's (rheumatologist-written)
emedicine.com description of Behcet's (dermatologist-written)
emedicine.com description of Behcet's (good overview of treatments)
Johns Hopkins Vasculitis/Behcet's site
National Institutes of Health's information on Behcet's
MedLine Plus search on Behcet's
National Institutes of Health's Clinical Trials Search Page
The Neuropathy Association
The Arthritis Foundation
The "got behcet's?" store (clothing and other products)
Free prescription medication for qualified patients in the US (The Medicine Program)
Social Security Disability (SSD), Medicare and Medicaid information
FAQ about applying for disability (www.disabilitysecrets.com)
http://www.behcet.org.il/chowsrecipe.htm
Information on the use of Chinese herbal medicine to treat Behcet's.
Article by M. Shapiro: Behcet's Disease: Immune Process and the Potential Impact of Nutritional Supplementation
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