Videos / Audio
Discovery Health's "Mystery Diagnosis" episode
about my 17-year search for a Behcet's diagnosis:
Part 1 (10 minutes)
Please see my notes below about some
of the info presented in this episode.
YouTube's audio/video is occasionally
out of sync on this episode (unpredictable).
Part 2 (8 minutes)
IMPORTANT NOTES ABOUT THIS "MYSTERY DIAGNOSIS" EPISODE:
- I didn't supply the picture in this video of fluid-filled blisters (called vesicles) that covered the patient's legs. When I get these blisters, they're nearly always on my fingers/hands or feet/toes. They're pretty small, although I've had one on my ankle that was about 1/4" in diameter. I've also had some blisters on my scalp and knees. However, I've never had them all over my legs like the picture shows, and I haven't heard of other BDers with extensive blister eruptions on their legs like the picture showed, either. Of course, that doesn't mean that it can't happen, just that I haven't heard of it or seen it through my own connections. From what I understand, though, other autoimmune illnesses could cause big eruptions like that: Sweet's syndrome may be one possibility, and Sweet's occasionally shows up in people who have BD.
- I also didn't supply the picture of oral ulcers that appears in the video (i.e., that wasn't my mouth in the picture).
- The show implied that there was one specific drug that put me into remission, but that wasn't the case. My remission lasted approximately two years, but I now have occasional symptoms again (although they're MUCH better than they used to be).
BOOKS ABOUT BEHCET'S DISEASE ARE AVAILABLE AT MY ONLINE BOOKSTORE
To purchase a copy of the show through iTunes ($1.99):
Click on the iTunes logo below, which will take you to the iTunes store.
Scroll down the listed episodes to find
Episode 8 of the first season of Mystery Diagnosis.
The episode is called "Blood Brothers." There are two separate stories
in this hour-long episode, and my Behcet's story is the last half.
Do you think you have Behcet's Disease?
This 60-second ABDA public service announcement covers the
most important symptoms of Behcet's, and how to get help.
This 60-second ABDA public service announcement covers the
most important symptoms of Behcet's, and how to get help.
Behcet's Disease Explained
A 10-minute video created by the American Behcet's Disease Association.
It features patients (including Olympic athlete Sanya Richards) and
ABDA Board members, discussing their symptoms, how this rare
autoimmune illness is diagnosed, and how you can help.
A 10-minute video created by the American Behcet's Disease Association.
It features patients (including Olympic athlete Sanya Richards) and
ABDA Board members, discussing their symptoms, how this rare
autoimmune illness is diagnosed, and how you can help.
