Behcet's Disease Books and Resources
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Behcet's Books


Essential Guide to
Behcet's Disease

Written & compiled by Joanne Zeis

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"An extraordinary reference guide that will be of enormous value to every patient with this disease." (C. Stephen Foster, MD, FACS, Massachusetts Eye Research and Surgery Institute). Equally suitable for patients and healthcare providers. Twelve chapters of extensively-researched critical information, on subjects such as: Behcet's during pregnancy and  postpartum, BD in families, Behcet's in children, 45 pages of frequently-asked questions, and a detailed chapter on medications and treatments. Includes two physician-authored chapters on neuro-Behcet's and visual complications. Appendix includes information on applying for disability benefits in the US and UK. Extensive index. (198 pages)
                           
                         $ 30

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You Are Not Alone:
15 People with Behcet's
Written by Joanne Zeis

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Men, women and children from the US and Canada share their experiences living with Behcet's disease. Each of the fifteen patients' first symptoms and disease progression is covered in depth, as well as treatments in use, and other medical problems that may be related to this chronic illness. In addition to the twelve chapters on adult patients, this book includes profiles of three children with Behcet's: an 8-year-old girl, a 12-year-old boy, and a 16-year-old girl. You Are Not Alone is a valuable reference work for members of the medical community, and makes a compassionate gift for patients, their family members, or friends.
                          
                           
                          $ 18

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Questions & Answers about
Behcet's Disease
Created by the NIH and NIAMS, updated 2004

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A 22-page booklet. Includes additional background information on common treatments, and briefly discusses more recent treatment options.

An online version of this booklet is available for free, at:

http://www.niams.nih.gov/Health_Info/Behcets_Disease/default.asp

                Printed version:  $ 2

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Please donate to help Joanne continue her work. (Any amount is appreciated; donations are not tax-deductible)

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Behcet's Disease:
A Contemporary Synopsis
Edited by Plotkin, Calabro & O'Duffy

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Back in print! This classic 320-page reference work (c. 1987) on Behcet's has finally been reprinted in paperback form with permission from Futura Publishing. It contains the entire text, photographs and index of the first edition. Ideal for healthcare professionals, or patients familiar with medical terminology, when bought in combination with "Essential Guide to Behcet's." Includes chapters on: history of Behcet's disease; epidemiology; immunology; hematologic aspects; pathology; triple-symptom complex; musculoskeletal manifestations; cardiac, vascular, renal and pulmonary features; GI, hepatic, splenic, pancreatic, genitourinary and dermatologic features; neuro-Behcet's. This book may look old-school, but the information is still valuable today.
                         $ 30

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But you LOOK good! Understanding & encouraging people with chronic illness
By Sherri Connell

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Even though people with chronic conditions may LOOK healthy, it doesn't mean that they FEEL the same way. 'But you LOOK good!' provides a convenient, informative way to educate loved ones about what people with debilitating illnesses and pain struggle with, fight for and need from their friends and family. It's easy to read and gives practical ideas on how loved ones can be supportive (47 pages).
                           $ 5 

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Behcet's Disease wallet-sized
information card
By Joanne Zeis

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The Behcet's Disease Information Card is printed on both sides of a credit-card sized piece of  light blue card stock. One side carries information on primary and secondary symptoms and medical problems associated with Behcet's. The other side has an overview of Behcet's disease, and a caution to doctors about possible medications in use. Excellent for handing to medical personnel, family or friends for quick explanations.
                  Five cards for $ 1

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Not by Sight: A guide to ministering to believers living with chronic illness
By Wayne and Sherri Connell

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As humans, we commonly wrestle with understanding disabilities and illness. Unfortunately, often the first assumption about a believer with a continuing illness is that s/he must not have enough faith or must be hiding a sin. This attitude can be devastating to those who love the Lord and have a  great deal of faith.

This booklet explains our natural responses to people debilitated by chronic illness and gives  many examples of how to be a true encourager  to our brothers and sisters in need! It is full of Scripture and quotes from physicians who specialize in chronic conditions. It is a must for all believers, church staff and ministry leaders.  
                    $ 7   (85 pages)

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A selection of informational brochures and booklets on health issues that some Behcet's patients may face. All brochures listed below are $1 each:


Pain: Hope through research
Neurological tests
Peripheral neuropathy
Sjogren's syndrome
Raynaud's syndrome
Fibromyalgia
Cataracts
Multiple sclerosis
Lupus


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Copyright 2012 Joanne Zeis