About
As a long-time member and supporter of the American Behcet's Disease Association, Joanne Zeis works closely with the organization in distributing books and resources for patients, their loved ones, and healthcare providers. She is also a member of the International Society for Behcet's Disease, NORD, the Alliance of Professional Health Advocates, the Vasculitis Foundation, and the American Medical Writers Association. She is a graduate of UCLA's Patient Advocacy program and holds a B.S. in Psychology from Tufts University.
Joanne's 17-year search for a Behcet's diagnosis was the subject of an episode of the Discovery Health Channel's "Mystery Diagnosis" TV series in 2005. The show can be seen in the Videos section of this website.
In 2006, Joanne was the sole recipient of the American Medical Association's Citation for Distinguished Service award, for her ongoing work on behalf of Behcet's patients. The Citation is the highest national award given each year by the AMA to a non-medically-trained individual.
Joanne works as a case manager at a major pharmaceutical company for patients with rare diseases. She is the author of "Essential Guide to Behcet's Disease" and "You Are Not Alone: 15 People with Behcet's." Her most recent Behcet's book is the recipient of a 2015 National Health Information Merit Award for Patient Education.
Joanne administers the Behcet's Disease Books and Resources website and the searchable Essential Behcet's blog. She is also a frequent contributor to online BD patient support groups. Joanne has been living with Behcet's disease since 1979 and advocating for patients' needs since 1998.
Joanne Zeis
PO Box 255
Uxbridge, MA 01569 USA
Send email: joanne1 at behcetsdisease dot com
About Behcet's Basics Blog Books Order/Donate Events Links Contact
Copyright 2017 Joanne Zeis
Joanne's 17-year search for a Behcet's diagnosis was the subject of an episode of the Discovery Health Channel's "Mystery Diagnosis" TV series in 2005. The show can be seen in the Videos section of this website.
In 2006, Joanne was the sole recipient of the American Medical Association's Citation for Distinguished Service award, for her ongoing work on behalf of Behcet's patients. The Citation is the highest national award given each year by the AMA to a non-medically-trained individual.
Joanne works as a case manager at a major pharmaceutical company for patients with rare diseases. She is the author of "Essential Guide to Behcet's Disease" and "You Are Not Alone: 15 People with Behcet's." Her most recent Behcet's book is the recipient of a 2015 National Health Information Merit Award for Patient Education.
Joanne administers the Behcet's Disease Books and Resources website and the searchable Essential Behcet's blog. She is also a frequent contributor to online BD patient support groups. Joanne has been living with Behcet's disease since 1979 and advocating for patients' needs since 1998.
Joanne Zeis
PO Box 255
Uxbridge, MA 01569 USA
Send email: joanne1 at behcetsdisease dot com
About Behcet's Basics Blog Books Order/Donate Events Links Contact
Copyright 2017 Joanne Zeis
