About
As a long-time member and supporter of the American Behcet's Disease Association, Joanne Zeis works closely with the organization in distributing books and resources for patients, their loved ones, and healthcare providers. She is also a member of the International Society for Behcet's Disease, the American Medical Writers Association and the Alliance of Professional Health Advocates. She holds a B.S. in Psychology from Tufts University, with additional classes through the Continuing Education Department of Harvard Medical School, and the Center for Spirituality, Theology and Health at Duke University Medical Center. She recently graduated from UCLA's yearlong Patient Advocacy program.
Joanne's 17-year search for a Behcet's diagnosis was the subject of an episode of the Discovery Health Channel's "Mystery Diagnosis" TV series in 2005. The show can be seen in the Videos section of this website.
In 2006, Joanne was the sole recipient of the American Medical Association's Citation for Distinguished Service award, for her ongoing work on behalf of Behcet's patients. The Citation is the highest national award given each year by the AMA to a non-medically-trained individual.
Joanne works as a freelance medical/health writer and editor. She is the author of "Essential Guide to Behcet's Disease" and "You Are Not Alone: 15 People with Behcet's." A third Behcet's book is under contract, with a planned publication date of October 2014. Joanne administers the Essential Behcet's blog, is a frequent contributor to online BD patient support groups, and is in the process of setting up a medical-information advocacy company to help newly-diagnosed Behcet's patients receive critical, personalized information (www.PatientPathfinders.com). Joanne has been living with Behcet's disease since 1979 and advocating for patients' needs since 1998.
Joanne Zeis
PO Box 255
Uxbridge, MA 01569 USA
Fax: 1.508.278.5145
Send email: joanne at behcetsdisease dot com
JOANNE IS NOT AVAILABLE TO RESPOND TO EMAILS UNTIL JULY 28, 2014
About Behcet's Basics Blog Books Order/Donate Events Links Contact
Copyright 2014 Joanne Zeis
Joanne's 17-year search for a Behcet's diagnosis was the subject of an episode of the Discovery Health Channel's "Mystery Diagnosis" TV series in 2005. The show can be seen in the Videos section of this website.
In 2006, Joanne was the sole recipient of the American Medical Association's Citation for Distinguished Service award, for her ongoing work on behalf of Behcet's patients. The Citation is the highest national award given each year by the AMA to a non-medically-trained individual.
Joanne works as a freelance medical/health writer and editor. She is the author of "Essential Guide to Behcet's Disease" and "You Are Not Alone: 15 People with Behcet's." A third Behcet's book is under contract, with a planned publication date of October 2014. Joanne administers the Essential Behcet's blog, is a frequent contributor to online BD patient support groups, and is in the process of setting up a medical-information advocacy company to help newly-diagnosed Behcet's patients receive critical, personalized information (www.PatientPathfinders.com). Joanne has been living with Behcet's disease since 1979 and advocating for patients' needs since 1998.
Joanne Zeis
PO Box 255
Uxbridge, MA 01569 USA
Fax: 1.508.278.5145
Send email: joanne at behcetsdisease dot com
JOANNE IS NOT AVAILABLE TO RESPOND TO EMAILS UNTIL JULY 28, 2014
About Behcet's Basics Blog Books Order/Donate Events Links Contact
Copyright 2014 Joanne Zeis
